Friday, December 23, 2011
Thursday, December 15, 2011
Saturday, December 3, 2011
Tuesday, November 29, 2011
Liberation Treatment, CCSVI, MS trial, Multiple Sclerosis Liberation
Dayton Ohio now on board with trial for CCSVI through Hubbard Foundation!
Liberation Treatment, CCSVI, MS trial, Multiple Sclerosis Liberation
Liberation Treatment, CCSVI, MS trial, Multiple Sclerosis Liberation
10 Month Post Angio Doppler Ultrasound results
see my page on facebook for lots more CCSVI information, research and links:
(15) CCSVI Treatment for Wendy
Sunday, November 20, 2011
Thursday, November 10, 2011
Whimsy Cafe
My new website is almost finished....just need your submissions, poems, stories, videos and photos of encouragement and inspiration!
Blessings Wendy
Whimsy Cafe
Blessings Wendy
Whimsy Cafe
Friday, October 28, 2011
Patient Information Day -Feb 18 Orlando Florida
The International Society for NeuroVascular Disease
2nd Annual ISNVD Scientific Meeting
http://www.isnvd.org/index.php?site=patientday
2nd Annual ISNVD Scientific Meeting
http://www.isnvd.org/index.php?site=patientday
Thursday, October 6, 2011
Tuesday, September 27, 2011
8 months Post Angio
Hello all!
I am 8 months new today! I have been doing physiotherapy for the past few months and have actually seen muscle recovery and improvement in strength and balance big time. This is huge news as previous physiotherapy sessions left me drained, weak and no noticeable improvement in muscle recovery.l I have just started water aerobics as well for the fall and loving it. Right now I am working for Elections Ontario 2-10 hours per day every day. This is huge. No fatigue, brain is functioning very well and no overheating. I am still sweating and also walking farther each week and hope to soon be up to a good 30 minute walk before I go to Florida. Keep the prayers coming my way for continued healing and recovery, I really appreciate them. Blessings
Wendy
Saturday, September 24, 2011
Friday, September 23, 2011
Dr. Michael Arata - JVH (CCSVI) Aug 26 in Barrie Ontario on Vimeo
Video Link to Dr. Mike Arata presentation in Barrie Ontario
Dr. Michael Arata - JVH (CCSVI) Aug 26 in Barrie Ontario on Vimeo
Dr. Michael Arata - JVH (CCSVI) Aug 26 in Barrie Ontario on Vimeo
Monday, September 12, 2011
Saturday, September 10, 2011
Hubbard Foundation, CCSVI, and Health: Glutathione-The Body's Lead Antioxidant
Please read this article on one of the most important post treatment ingredients your veins and brain need from the Hubbard Foundation.
Hubbard Foundation, CCSVI, and Health: Glutathione-The Body's Lead Antioxidant
Hubbard Foundation, CCSVI, and Health: Glutathione-The Body's Lead Antioxidant
Friday, September 9, 2011
Medications Pre and Post Angioplasty treatment for CCSVI
Here are the meds I was prescribed by doctors and neuros I was taking for ten years or more before CCSVI Treatment last January.
- Avonex Beta 1A Interferon once a week intermuscular injection. Side effects were racing heart, palpitations, flu like symptoms with aching joints and muscles, headache, very tired and weakness for three - four days following. Along with this I had to take tylenol for up to three days 2-3 pills per day.
- Oxybutin chloride (Ditropan) for neurogenic bladder. Side effects were excessive thirst (dry mouth) and dry skin. 3 pills per day to help my bladder function properly. (incontinence & urge)
- Blood Pressure meds:Avapro side effects - none. 1 pill per day.
- Baclofen - For releif of muscle spasm and clenching. Side effects were loss of total digestive & elimination system from top to bottom. This story is too gory to tell but if you want to know more you can email me and I will send you all the dirty details. Suffice to say here that it was the most unpleasant and depressing time of my life so far.
- Steroids - mega dose of high potency to snap my body out of paralysis. Side effects - weight gain, hunger, craving for sweets.
Sunday, September 4, 2011
ms_ccvsi_pro.pdf (application/pdf Object)
Government Publication for Aftercare of CCSVI treated patients with complications.
ms_ccvsi_pro.pdf (application/pdf Object)
ms_ccvsi_pro.pdf (application/pdf Object)
Wednesday, August 31, 2011
Dr Teri Jaklin ND - JVH (CCSVI) Her experience with MS, CCSVI treatment and what you can do now to control this disease on Vimeo
This is a must see video from Dr. Teri Jaklin my Naturopath! Everything you need to know about CCSVI & MS care pre - post angio and for those who do not choose as yet to have it done.
Dr Teri Jaklin ND - JVH (CCSVI) Her experience with MS, CCSVI treatment and what you can do now to control this disease on Vimeo
Dr Teri Jaklin ND - JVH (CCSVI) Her experience with MS, CCSVI treatment and what you can do now to control this disease on Vimeo
Sunday, August 28, 2011
Monday, August 15, 2011
National CCSVI Society Patient Information Session with Dr.... - Eventbrite
Dr. Bill Code in Hamilton Ontario discusses CCSVI
National CCSVI Society Patient Information Session with Dr.... - Eventbrite
National CCSVI Society Patient Information Session with Dr.... - Eventbrite
Thursday, August 4, 2011
EMAIL BLITZ!!! Aug. 10, 2011 "MY IMPROVEMENTS" to Senators, MPPs, MPs + (1)
EMAIL BLITZ!!! Aug. 10, 2011 "MY IMPROVEMENTS" to Senators, MPPs, MPs + (1)
Attention: Everyone who has been treated for CCSVI !~ Please email your own version of "My Improvements" to Canadian Senators, MPPs, MPs, Steven Harper pm.@pm.gc.ca, Alain Beaudet alain.beaudet@cihr-irsc.gc.ca, David Butler Jones ph-sp-info@phac-aspc.gc.ca on August 10, 2011. We'd like as many personal versions as possible to be emailed on the morning of August 10. We believe this will make a strong statement
Attention: Everyone who has been treated for CCSVI !~ Please email your own version of "My Improvements" to Canadian Senators, MPPs, MPs, Steven Harper pm.@pm.gc.ca, Alain Beaudet alain.beaudet@cihr-irsc.gc.ca, David Butler Jones ph-sp-info@phac-aspc.gc.ca on August 10, 2011. We'd like as many personal versions as possible to be emailed on the morning of August 10. We believe this will make a strong statement
Wednesday, July 27, 2011
6 Months Post Angio Update
Hi all, A little note to show my progress to date. Video to follow on YouTube soon!
Someone mentioned to me the other day that I could sit outside in this heat wave now without my cooling bands. We rarely put the air conditioner on in the house. It is truly a miracle from God and I am very blessed. Thank God we have a pool to keep cool in though as well.
PHYSIO:
I have spent the last couple of months getting my strength and muscles built up through physiotherapy, swimming, walking and hiking. It is not going as fast as I had hoped it would and I am still finding issues with the muscles not responding as I thought they would by now. My feet and lower legs do go numb a bit after about 30 minutes of walking but not nearly as much as before procedure as they would be numb right up to my thighs within 15 minutes. . I go for a walk most days with my puppy Jasper (we share him with our daughter Lisa). After going head on into hiking on the beach with my walking sticks I injured a tendon and strained muscle in my arm which is still healing. I must learn to take things slowly which I am now doing so with guidance from my physiotherapist. We are hoping to know more about my muscle strength in another month. My physiotherapist holds out hope though, as he has seen progress made after one year where nerves and muscles respond after continued efforts, so we are not giving up. Riding a bicycle and golfing are my ultimate goals for this winter in Florida and this is what we are working towards at physio.
BLOODWORK & Physical Checkup:
Looking very good in all departments! My family doctor is very happy with my progress. No Babinsky's reflex, blood pressure great, losing weight for the first time in 12 years at two pounds per month so far. I can walk, stand, sit, twirl, dance etc...Bladder medication:Oxybutinchloride (Ditropan) was 3xday now 0. Except for the Interferon Beta 1A I take which is suppressing my immune system the way it is supposed to I would have a perfect blood workup! Energy is high and very little fatigue (only on the days after my needle).
NATOROPATHIC DR. TERI JAKLIN:Teri Jaklin in Costa Rica
I am being treated by Teri and I am following her plan for MS patients. This plan can be found here Nutritional Management of MS and also some great videos she has made with Dr. Mark Hacke, Dr. Bill Code & Dr. Joseph Hewett. CCSVI Videos (this will lead you to all 5 videos). They are all collaborating together to help us out with aftercare for angioplasty for CCSVI and have much good advice to follow. I was tested for food and metal sensitivities and have been found to have heavy metals more lead, aresenic and cadmium than anything else so am being chelated with drops for the next two months. (Air pollution, chemicals from my husband's workplace, years of smoking, my past work as a plumbers daughter and sister exposed me to a lot of lead solder, pipes etc.) My metabolism is basically zero which is no surprise to me. I am taking Dr. Jaklin's Neuroform B complex, multi strain probiotics, using castor oil packs and eating basically rice, salads, vegetables and fruit. Protein is powder, hemp hearts fish, eggs, chicken. Found some new recipes so I have been trying out a few. I do not like quinoi which is a powerhouse of protein so must use other things instead. I have just found some I can tolerate in my favourite breakfast cereal mix from ECO Planet Organics Instant Hot Cereal Apples and Cinnamon
which I use as a topping for my fruit bowl along with some goat yogurt and molasses. I am now taking 4000 Vitamin D-3 and sitting in the sunshine as much as possible. Because I do not eat fish I take Fish Oil Omega-3, 1000 mg with epa 1200, Natrol Green Tea Capsules Milk Thistle to help my liver, and I take Natural Calm with calcium and zinc. Kale, Romaine lettuce, spinach, napa cabbage are my greens of choice along with parsley, time, oregano, cilantro, basil from my garden. Squash, broccoli, zuchinni, Organic Tahini 
,Almond Butter.
, Organic Texmati Brown Rice
, Himalayan Red Rice, Tinkyada Brown Rice Penne Pasta are now staples in my cupboards. Sheep and goats cheese and yogurt and almond or rice milk for cooking and blending. I use honey and mollasses for sweetening and baking. I did not have egg sensitivity so for that I am most grateful as I do like to use eggs in my cooking and baking. I must say here that I am no longer burning from pain in stomach and colon. There is a noticeable improvement in bowel function. I am not totally gluten, wheat or meat free but am dairy free now, I am getting there, as it is very hard.
EMOTIONS:
Depression has lifted about 75% I still feel down a few days but find it does not linger on like before. I have not cried in over six months. My husband would say this is the miracle as I cried all the time before procedure. (He is a saint!) I am happy and smiling a lot. People tell me I am glowing!
NEUROLOGICAL CHECKUP:
August 2-Good checkup. Because I am not in inflammation at this time and I am doing so well I have decided to go off of my Interferon. The side effects are taking a toll on me and I would just like to see if my body can clear the after effects and come to some sort of balance again. Please say a prayer for me that all goes well and that my healing continues. I have two very good doctors supporting me and a lot of peace from the Lord as well. We will be doing an MRI comparison of before and after in December so I will keep everyone posted.
Someone mentioned to me the other day that I could sit outside in this heat wave now without my cooling bands. We rarely put the air conditioner on in the house. It is truly a miracle from God and I am very blessed. Thank God we have a pool to keep cool in though as well.
PHYSIO:
I have spent the last couple of months getting my strength and muscles built up through physiotherapy, swimming, walking and hiking. It is not going as fast as I had hoped it would and I am still finding issues with the muscles not responding as I thought they would by now. My feet and lower legs do go numb a bit after about 30 minutes of walking but not nearly as much as before procedure as they would be numb right up to my thighs within 15 minutes. . I go for a walk most days with my puppy Jasper (we share him with our daughter Lisa). After going head on into hiking on the beach with my walking sticks I injured a tendon and strained muscle in my arm which is still healing. I must learn to take things slowly which I am now doing so with guidance from my physiotherapist. We are hoping to know more about my muscle strength in another month. My physiotherapist holds out hope though, as he has seen progress made after one year where nerves and muscles respond after continued efforts, so we are not giving up. Riding a bicycle and golfing are my ultimate goals for this winter in Florida and this is what we are working towards at physio.
BLOODWORK & Physical Checkup:
Looking very good in all departments! My family doctor is very happy with my progress. No Babinsky's reflex, blood pressure great, losing weight for the first time in 12 years at two pounds per month so far. I can walk, stand, sit, twirl, dance etc...Bladder medication:Oxybutinchloride (Ditropan) was 3xday now 0. Except for the Interferon Beta 1A I take which is suppressing my immune system the way it is supposed to I would have a perfect blood workup! Energy is high and very little fatigue (only on the days after my needle).
NATOROPATHIC DR. TERI JAKLIN:Teri Jaklin in Costa Rica
I am being treated by Teri and I am following her plan for MS patients. This plan can be found here Nutritional Management of MS and also some great videos she has made with Dr. Mark Hacke, Dr. Bill Code & Dr. Joseph Hewett. CCSVI Videos (this will lead you to all 5 videos). They are all collaborating together to help us out with aftercare for angioplasty for CCSVI and have much good advice to follow. I was tested for food and metal sensitivities and have been found to have heavy metals more lead, aresenic and cadmium than anything else so am being chelated with drops for the next two months. (Air pollution, chemicals from my husband's workplace, years of smoking, my past work as a plumbers daughter and sister exposed me to a lot of lead solder, pipes etc.) My metabolism is basically zero which is no surprise to me. I am taking Dr. Jaklin's Neuroform B complex, multi strain probiotics, using castor oil packs and eating basically rice, salads, vegetables and fruit. Protein is powder, hemp hearts fish, eggs, chicken. Found some new recipes so I have been trying out a few. I do not like quinoi which is a powerhouse of protein so must use other things instead. I have just found some I can tolerate in my favourite breakfast cereal mix from ECO Planet Organics Instant Hot Cereal Apples and Cinnamon
which I use as a topping for my fruit bowl along with some goat yogurt and molasses. I am now taking 4000 Vitamin D-3 and sitting in the sunshine as much as possible. Because I do not eat fish I take Fish Oil Omega-3, 1000 mg with epa 1200, Natrol Green Tea Capsules Milk Thistle to help my liver, and I take Natural Calm with calcium and zinc. Kale, Romaine lettuce, spinach, napa cabbage are my greens of choice along with parsley, time, oregano, cilantro, basil from my garden. Squash, broccoli, zuchinni, Organic Tahini ,Almond Butter., Organic Texmati Brown Rice, Himalayan Red Rice, Tinkyada Brown Rice Penne Pasta are now staples in my cupboards. Sheep and goats cheese and yogurt and almond or rice milk for cooking and blending. I use honey and mollasses for sweetening and baking. I did not have egg sensitivity so for that I am most grateful as I do like to use eggs in my cooking and baking. I must say here that I am no longer burning from pain in stomach and colon. There is a noticeable improvement in bowel function. I am not totally gluten, wheat or meat free but am dairy free now, I am getting there, as it is very hard. EMOTIONS:
Depression has lifted about 75% I still feel down a few days but find it does not linger on like before. I have not cried in over six months. My husband would say this is the miracle as I cried all the time before procedure. (He is a saint!) I am happy and smiling a lot. People tell me I am glowing!
NEUROLOGICAL CHECKUP:
August 2-Good checkup. Because I am not in inflammation at this time and I am doing so well I have decided to go off of my Interferon. The side effects are taking a toll on me and I would just like to see if my body can clear the after effects and come to some sort of balance again. Please say a prayer for me that all goes well and that my healing continues. I have two very good doctors supporting me and a lot of peace from the Lord as well. We will be doing an MRI comparison of before and after in December so I will keep everyone posted.
Thursday, July 21, 2011
Videos Posted by Barbara Iglesias Garcia: Pop Up Video (8)
Fabulous Dr. Bulent Arslan in a great video message with my friend Barbara Garcia.
Videos Posted by Barbara Iglesias Garcia: Pop Up Video (8)
Videos Posted by Barbara Iglesias Garcia: Pop Up Video (8)
Saturday, July 16, 2011
Dr. Bulent Arslan Interview re:CCSVI Angioplasty Treatment
Here is a wonderful article from an interview with my fabulous Dr. Bulent Arslan from Moffitt Cancer Center in Tampa Florida discussing CCSVI angioplasty treatment.
MS Controversy: Inflating Veins, Deflating Symptoms - Health News Story - KSAT San Antonio
MS Controversy: Inflating Veins, Deflating Symptoms - Health News Story - KSAT San Antonio
Wednesday, July 13, 2011
Blood Thinners & Supplements Pre & Post Angioplasty
A very important note from Linda Roussey about blood thinners before and after angioplasty. I would also add: regular or low dose Aspirin & FIsh Oil should not be taken before angioplasty as well. I stopped 7 days before and resumed after Plavix (or your prescribed blood thinner) was finished.
Here is the link:
Blood Thinners FYI (411)
Here is the link:
Blood Thinners FYI (411)
Tuesday, July 12, 2011
Wednesday, June 29, 2011
Monday, June 27, 2011
5 Month Post Angio Update
Today I am 5 months old in my newly transformed body and I am doing fabulously well! I have been doing lots of walking, shopping, Nordic pole walking along the beach and hiking. I am doing everything I have been dreaming about for a while now and I feel wonderful. This weekend we went to the Pinery Flea Market and walked all around the whole place with Meridsy. We watched a magic card trick lady demonstrate all morning, bought a pink flamingo, fudge and popcorn, sat on an amazing wooden garden set and had a good time on a beautiful Sunday. I am a little sore from my old muscles being used for the first time in a good way for a long time but with the help of Dr. Teri Jaklin and trying to follow her good nutritional and healing advice to keep my blood flowing and giving my muscles the nutrition and energy they need to function properly, it seems to be working. I am getting stronger and am trying to adjust my whole being (Spirit, Soul & Body) to this new paradigm shift. I am reading a book without any pain or cog fog it is wonderful and a wonderful book it is” CCSVI as the Cause of Multiple Sclerosis by Marie A. Rhodes: The Science Behind the Controversial Theory. Going to try riding a bike soon, booking tickets for Jesus Christ Superstar at the Avon theatre in August and WWE wrestling is coming to London in September and I am going! Whoo Hoo! If Josh Groban is anywhere between Detroit and Toronto I am gonna go to that too! Sign Me Up! I’m In!
Love and Blessings to all
Wendy
PS my friend Tim Donovan is going to be in London & Sarnia to rally support for CCSVI Treatment in Canada. Please support him and stop by to see him and if anyone you know with MS and wants to learn about CCSVI treatment come on out and hear his amazing story. You can find out more at http://www.newhopeforms.ca
Friday, June 24, 2011
EGCG (green tea) - an iron chelator, anti-inflammatory and super anti-oxidant
Why Green Tea Extract EGCG should be used by people with MS & CCSVI. Drinking green tea is also a plus as it is full of antioxidents, polyphenols and good for our whole body as well. Here is an article about it by Joan Beal:
EGCG (green tea) - an iron chelator, anti-inflammatory and super anti-oxidant
EGCG (green tea) - an iron chelator, anti-inflammatory and super anti-oxidant
Wednesday, June 22, 2011
Monday, June 6, 2011
What I can do today...
What I can do today...
by CCSVI Treatment for Wendy on Tuesday, May 3, 2011 at 7:03pm
Four Months Post Angio Update
CCSVI Treatment for Wendy Today is my birthday! Four months old as a new woman! Yesterday I shopped alone for four hours! Bought and carried all my own stuff including three ceiling fans, drove all over town, walked around and window shopped. For the past three weeks I have been doing spring cleaning and organizing my house. Today is more cleaning upstairs -has to be done before the weekend. The only two days a week I am down is when I get my Avonex needle. This is for all you naysayers, keep the placebo effect going! I am living my life and lovin it happy and healthy and whole again! Thanks Be To God who gave me this wonderful miracle through Dr. Arslan's skillful hands. Blessings to all. Wendys.
Saturday, June 4, 2011
POST ANGIO:Nutrition, Vitamins & Supplements for Vein Health
I have recently attended Dr. Teri Jaklin's wonderful Naturopathic Health Clinic in Waterdown Ontario and am starting a new way of living. I will keep you posted as of next month on the new way of eating, exercising and supplements I am now taking. I wasn't too far off the mark along the way I was taking so I don't feel bad and realize because I was trying to do the right things - my health improved and the success of my procedure is proof! More to come...
Pre-treatment Diet, Nutrition, Vitamins & Supplements & Exercise
This is an outline of what I have been doing for the past ten years before treatment for CCSVI in order to create an environment for my body to heal and become stronger from a devestating attack of MS. You can find out more, get some great recipes and read excerpts from my journey through MS by purchasing my cookbook "Recipes From The Heart Complete". This book is filled with wonderful recipes, hints and tips using organic, fair trade products from Blessings Coffee Break.
The Diet:
I had a very compromised digestive system after my MS attack and could only eat mashed potatoes for weeks after, then the first meat I could eat was of all things a hot dog! (I still enjoy a hot dog about once a month with vegetarian chili!). I now follow a diet utilizing low Fat, no saturated or trans fat ingredients.I cleaned out my cupboards and try not to use any processed food. My baking supplies and spices are organic and whole whole grain & gluten free, organic fair trade cocoa and dark chocolate. I use Extra Virgin Olive Oil to dress salads, and cook with. Eggs three times a week or more. Organic, Fresh fruits and vegetables from the Farmer's Market in season and frozen vegetables in winter, local honey, apple cider vinegar, organic whole grains, rice & oats. I recently started going less dairy & more gluten free using rice and almond milk for cereal and drinking. I have a probiotic capsule every morning. I eat mostly chicken, fish, and seafood instead of beef or pork (harder to digest) except in spagetti sauce - a small amount of ground beef in the sauce does not seem to bother me and I do substitute ground chicken or turkey in my sauce and chili as well. I make my own french fries coating the potatoes with spices and olive oil spray then baking in the oven. Sweet potato fries are great this way as well. For Poutine (a family favourite) I usually use pork & beans for the gravy and shredded low fat cheese to melt on top! Delicious! I drink lots of organic, fair trade green tea, white tea and black tea, & coffee because we sell it! Blessings Coffee Break carries Numi, Choice & Equita Organic Fair Trade teas and Level Ground Trading Ltd. Organic Fair Trade Coffees from around the world!
The Supplements:
ECGC-Green Tea Extract
I take one/day.
I take one/day.Omega 3 Wild Salmon Oil
I take 6/day
I take 6/day Calcium Magnesium & Zinc
I take 2/day
I take 2/day
The Vitamins:
Multi Vitamin
I take 1 day
I take 1 dayVitamin D3
I take 2000/day in summer and 4000/day in winter
I take 2000/day in summer and 4000/day in winterVitamin C
I take one or two per day summer and winter
Vitamin B12 sublingual I take one or two per day summer and winter
I take 1 day
CCSVI Treatment for Wendy
CCSVI Treatment for Wendy
May 27, 2011
Today is my birthday! Four months old as a new woman! Yesterday I shopped alone for four hours! Bought and carried all my own stuff including three ceiling fans, drove all over town, walked around and window shopped. For the past three weeks I have been doing spring cleaning and organizing my house. Today is more cleaning upstairs -has to be done before the weekend. The only two days a week I am down is when I get my Avonex needle. This is for all you naysayers, keep the placebo effect going! I am living my life and lovin it happy and healthy and whole again! Thanks Be To God who gave me this wonderful miracle through Dr. Arslan's skillful hands. Blessings to all. Wendys.
May 27, 2011
Today is my birthday! Four months old as a new woman! Yesterday I shopped alone for four hours! Bought and carried all my own stuff including three ceiling fans, drove all over town, walked around and window shopped. For the past three weeks I have been doing spring cleaning and organizing my house. Today is more cleaning upstairs -has to be done before the weekend. The only two days a week I am down is when I get my Avonex needle. This is for all you naysayers, keep the placebo effect going! I am living my life and lovin it happy and healthy and whole again! Thanks Be To God who gave me this wonderful miracle through Dr. Arslan's skillful hands. Blessings to all. Wendys.
I am not a particularly brave person... - CCSVI Locator
I am not a particularly brave person... - CCSVI Locator
that is for sure. I am a big suck when it comes to pain consequently my hubby rushes to bring me sweets and ice cream when I am feeling pain. I was in pain most days. I found a great over the counter medicine to take which helped me a lot and I found that heating pads, prayer, meditation and music also soothed my pain. I never quite understood all the pain I was in. I was told it was caused by the deterioration of the myelin sheath covering my nerves. I was told some of it was just "sensation" and it would not hurt me... but i did hurt. I was told not to worry and to just carry on when I had chest pains so bad I thought I was having a heart attack many times. I could hardly breathe or move some days it hurt so bad. I was told that my muscles would heal and work better if I used them more, I did, but it hurt so much. Epsom salts baths would help a lot with muscle pain and heating pads as well. I was told to do deep breathing exercises and sing. It hurt but I did it anyways. I smiled even though it hurt. I tried to learn new things to keep my brain working and to think clearly even though that hurt. January 27, 2011 my IR Dr. Bulent Arslan performed simple angioplasty for CCSVI, opening my blocked azygous vein, and right jugular vein valve and upper vein. Today the only thing that hurts is my heart and that is breaking for all of those suffering with Multiple Sclerosis whose hope is to be diagnosed and treated for CCSVI and have some of thier symptoms releived in Canada.
that is for sure. I am a big suck when it comes to pain consequently my hubby rushes to bring me sweets and ice cream when I am feeling pain. I was in pain most days. I found a great over the counter medicine to take which helped me a lot and I found that heating pads, prayer, meditation and music also soothed my pain. I never quite understood all the pain I was in. I was told it was caused by the deterioration of the myelin sheath covering my nerves. I was told some of it was just "sensation" and it would not hurt me... but i did hurt. I was told not to worry and to just carry on when I had chest pains so bad I thought I was having a heart attack many times. I could hardly breathe or move some days it hurt so bad. I was told that my muscles would heal and work better if I used them more, I did, but it hurt so much. Epsom salts baths would help a lot with muscle pain and heating pads as well. I was told to do deep breathing exercises and sing. It hurt but I did it anyways. I smiled even though it hurt. I tried to learn new things to keep my brain working and to think clearly even though that hurt. January 27, 2011 my IR Dr. Bulent Arslan performed simple angioplasty for CCSVI, opening my blocked azygous vein, and right jugular vein valve and upper vein. Today the only thing that hurts is my heart and that is breaking for all of those suffering with Multiple Sclerosis whose hope is to be diagnosed and treated for CCSVI and have some of thier symptoms releived in Canada.
RESEARCH:
The following research is how I made my decision to have treatment. I spent over two years reading and researching before booking my treatment with Dr. Arslan. At times I had to read two three and four times and ask people to help explain it to me. I have made some wonderful friends on facebook including doctors and nurses who know how to turn medical jargon into plain English. Many thanks to my facebook friends Joan Beal, Sief Hart and Dr. Bill Code .
Must Read: All of the notes from Joan Beal's Facebook Page:CCSVI-in-Multiple-Sclerosis. Also the whole CCSVI Alliance website including videos.
Great research links can also be found on Facebook:Denise Manley Facebook:All notes & papers links in one place
If you have not read this research it is not a good idea to book treatment. If you find it too difficult to read and understand the research please ask someone to help you.
Must Read: All of the notes from Joan Beal's Facebook Page:CCSVI-in-Multiple-Sclerosis. Also the whole CCSVI Alliance website including videos.
Great research links can also be found on Facebook:Denise Manley Facebook:All notes & papers links in one place
If you have not read this research it is not a good idea to book treatment. If you find it too difficult to read and understand the research please ask someone to help you.
CCSVI Treatment One Month Post Angioplasty
This has been such an exciting month for us. New changes every day. My vision and hearing are so much better and we notice things every day are different. I have so much energy it is astonishing! Meeting our new neighbours in our park in Florida I am very surprised how easily I can remember all their names and introduce them to others as well! My Sudoku puzzles are getting easier to do and I have more "I won"s than "I lost" than ever before in my book. My dry mouth is definitely diminishing and my bladder and bowel function is vastly improved. Heat intolerance is somewhat better but not so dangerous as before treatment. Pain is minimal...still no neck pain or need to prop up my neck with pillows and flax wraps. Life is Good!
The Treatment Plan and Procedures Accomplished
Hi everyone! Here is my update of my journey to angioplasty treatment for CCSVI
with references you can see for yourself. It was about one year ago in early November when my facebook page, email and phone lines lit up with a hundred messages to watch the CTV news report by Avis Favaro about a new treatment for Multiple Sclerosis
- angioplasty for blocked veins!
CTV News Report on CCSVI
with references you can see for yourself. It was about one year ago in early November when my facebook page, email and phone lines lit up with a hundred messages to watch the CTV news report by Avis Favaro about a new treatment for Multiple Sclerosis- angioplasty for blocked veins!CTV News Report on CCSVI
An Italian Doctor, Paolo Zamboni, had been looking for an answer for his wife who had MS and found in his research study that most of the MS patients also had narrowed, blocked or twisted jugular and or azygos veins (the veins which drain the brain and spinal cord).
Joan & Jeff Beal (jeff has MS) were also featured on this news report and I connected with her through facebook. Joan has pages and pages of notes with references to the research she had been doing for her husband Jeff and I started to follow along. They have started an organization to educate patients and doctors at CCSVI Alliance. All the latest science and medical studies and papers can be found at this website.
In late December early January I realized that this new treatment deserved more of my time to research and I made a decision to put my business on hold for one year and do as much scientific and medical research as I could, talk to as many people as I could and get connected with those who were pursuing treatment. Which I have done. I have spent three to five hours a day most days researching CCSVI reading medical journals, publications, studies, etc. My head and eyes hurt a lot and my shoulders and neck as well. I also had to read it all over again to Gus and was happy to find a lot of videos we could watch. I also become active in advocating for Canadians with MS who are being discriminated against not receiving treatment for CCSVI, through a grass roots organization AFA, Angioplasty For All. We have one of the top lawyers in Canada working on a Canadian Charter of Rights & Freedoms case which we will win. Please support us if you can and join the $20/month Club for one year.
In late December early January I realized that this new treatment deserved more of my time to research and I made a decision to put my business on hold for one year and do as much scientific and medical research as I could, talk to as many people as I could and get connected with those who were pursuing treatment. Which I have done. I have spent three to five hours a day most days researching CCSVI reading medical journals, publications, studies, etc. My head and eyes hurt a lot and my shoulders and neck as well. I also had to read it all over again to Gus and was happy to find a lot of videos we could watch. I also become active in advocating for Canadians with MS who are being discriminated against not receiving treatment for CCSVI, through a grass roots organization AFA, Angioplasty For All. We have one of the top lawyers in Canada working on a Canadian Charter of Rights & Freedoms case which we will win. Please support us if you can and join the $20/month Club for one year.
Midway through our Florida vacation I met a fellow online, Mark Lane's Liberation Blogspot who had put a plan together for CCSVI treatment on his blog and I followed along with him. He was "liberated" in Poland and is doing very well!. Oct 14 2010!
I met a wonderful lady on facebook Nicky Beagle-Watts who was angioplastied on August 19 and she is doing very well. You can find her and others who are being treated in Florida on CCSVI FLorida Group.
I chose Florida to be as local as possible for aftercare.and because I am so healthy and will be staying for the winter months. Dr. Bulent Arslan of the Moffit Cancer Centre is my doctor. He is amazing and can be reached at Moffitt Cancer Center Tampa Florida.
I have also spoken with a few people from Sarnia, London, Windsor and Owen Sound area who have already been treated and are doing well.
My plan has been achieved, all my tests are done and I was tested and treated in Tampa Florida for CCSVI on Jan. 27. I thank God and ask him to Bless America where these doctors believe in treating damaged veins and helping our brains heal over time.
I have heard some very happy stories and also some very sad stories and have met some wonderful facebook friends along the way and I know the Lord has been leading me in the right direction because of the people He has placed on my path along my journey this past year. Gus and I have done lots of praying about this decision as well and feel we are definitely going to be OK no matter what happens...God has a plan and He knows everything.
The plan has been accomplished and I am liberated. On January 26, 2011 my doctor, Dr. Bulent Arslan told me I had definite CCSVI! After reviewing my doppler ulltrasound report from Dr. Sandy McDonald Barrie Vascular Imaging and my MRV results from AI3 Clinic in Clearwater, Florida. He felt he had enough evidence of venous insufficiency to go to the venogram procedure and angio ballooning veins where required. I had a blockage in the azygous vein and the left jugular valve and vein. Angioplasty was successful and the healing began.
The first thing I felt was no pain! After twelve years! Then I felt a lessening of numbness overall in my body. That very night I felt my leg and sensations from the floor I was walking on. I knew it was carpet by the feel of the texture. Today I have complete and free movement of my legs and arms - no added weight from restricion. I still have some minor numbness and tingling but the level has lessened dramatically.This will take time. Balance is 100% and no more fuzzy head! My hearing is returning. I can feel my full face, neck. ears, eyes..etc. I can feel my mouth, tongue, cheeks, smile, my neck muscles now bulge when I make a face and absolutely no pain in my neck! It is hilarious! I am laughing all the time now! Just recently I was becoming worried I would have to go on medication for depression as I was feeling worse every day inside. Now I am happy!
More to come!
Wednesday, February 9, 2011
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