Wednesday, June 29, 2011

MS therapy clinical trials get federal OK - Health - CBC News

MS therapy clinical trials get federal OK - Health - CBC News

Monday, June 27, 2011

BREAKING NEWS! SENATOR JANE CORDY TABLES CCSVI BILL S-204 in SENATE

Here is the link to:

BREAKING NEWS! SENATOR JANE CORDY TABLES CCSVI BILL S-204 in SENATE

5 Month Post Angio Update

Today I am 5 months old in my newly transformed body and I am doing fabulously well! I have been doing lots of walking, shopping, Nordic pole walking along the beach and hiking. I am doing everything I have been dreaming about for a while now and I feel wonderful. This weekend we went to the Pinery Flea Market and walked all around the whole place with Meridsy. We watched a magic card trick lady demonstrate all morning, bought a pink flamingo, fudge and popcorn, sat on an amazing wooden garden set and had a good time on a beautiful Sunday. I am a little sore from my old muscles being used for the first time in a good way for a long time but with the help of Dr. Teri Jaklin and trying to follow her good nutritional and healing advice to keep my blood flowing and giving my muscles the nutrition and energy they need to function properly, it seems to be working. I am getting stronger and am trying to adjust my whole being (Spirit, Soul & Body) to this new paradigm shift. I am reading a book without any pain or cog fog it is wonderful and a wonderful book it is” CCSVI as the Cause of Multiple Sclerosis by Marie A. Rhodes: The Science Behind the Controversial Theory. Going to try riding a bike soon, booking tickets for Jesus Christ Superstar at the Avon theatre in August and WWE wrestling is coming to London in September and I am going! Whoo Hoo! If Josh Groban is anywhere between Detroit and Toronto I am gonna go to that too! Sign Me Up! I’m In!
Love and Blessings to all
Wendy
PS my friend Tim Donovan is going to be in London & Sarnia to rally support for CCSVI Treatment in Canada. Please support him and stop by to see him and if anyone you know with MS and wants to learn about CCSVI treatment come on out and hear his amazing story. You can find out more at http://www.newhopeforms.ca

Friday, June 24, 2011

EGCG (green tea) - an iron chelator, anti-inflammatory and super anti-oxidant

Why Green Tea Extract EGCG should be used by people with MS & CCSVI. Drinking green tea is also a plus as it is full of antioxidents, polyphenols and good for our whole body as well. Here is an article about it by Joan Beal:

EGCG (green tea) - an iron chelator, anti-inflammatory and super anti-oxidant

Monday, June 6, 2011

Two Month Update

Sunday - two months post angio - too busy having fun to post - I will try and write something soon!

Three month Doppler Ultrasound & Update

‎3 month doppler test done! Results: 0/5 criteria for CCSVI. I am 100% flowing free! I feel wonderful. I have had a great miracle from the Lord and I am very grateful to all who have prayed for me and supported me! Thanks Be To God for sending Dr. Arslan to us. Blessings to all who are on this journey to the truth about MS & CCSVI. For more results please see my note:What I can do today. Blessings Wendy

What I can do today...

What I can do today...

by CCSVI Treatment for Wendy on Tuesday, May 3, 2011 at 7:03pm
Today I can go for a walk, shop, attend pro sports events, dance, swim, sit in the hot sun all day long, carry my own groceries, push my own shopping cart, unpack them all and put them away, wash and dry and style my hair, stand up and have a shower, bend over and touch my toes more than once, walk without assistance and not fall into the bushes or walls, bend my toes, feel a ladybug land on my leg, feel a bee sting, feel my husband's skin, feel his mustache tickle me when he kisses me and more, I do not cry and have not cried except for tears of happiness since January 27, 2011, I can sweat, I can feel the sand under my feet, I can feel that the patio stones are hot and have crevices and cracks in them, my feet do not burn when I put them into the water, I have no more hypersensitvity in my feet, I do not have hot flashes, I have good blood flow, I know my brain is healing. Today I can do anything!

Four Months Post Angio Update

CCSVI Treatment for Wendy
Today is my birthday! Four months old as a new woman! Yesterday I shopped alone for four hours! Bought and carried all my own stuff including three ceiling fans, drove all over town, walked around and window shopped. For the past three weeks I have been doing spring cleaning and organizing my house. Today is more cleaning upstairs -has to be done before the weekend. The only two days a week I am down is when I get my Avonex needle. This is for all you naysayers, keep the placebo effect going! I am living my life and lovin it happy and healthy and whole again! Thanks Be To God who gave me this wonderful miracle through Dr. Arslan's skillful hands. Blessings to all. Wendys.

Saturday, June 4, 2011

POST ANGIO:Nutrition, Vitamins & Supplements for Vein Health

I have recently attended Dr. Teri Jaklin's wonderful Naturopathic Health Clinic in Waterdown Ontario and am starting a new way of living. I will keep you posted as of next month on the new way of eating, exercising and supplements I am now taking. I wasn't too far off the mark along the way I was taking so I don't feel bad and realize because I was trying to do the right things - my health improved and the success of my procedure is proof! More to come...

Pre-treatment Diet, Nutrition, Vitamins & Supplements & Exercise

This is an outline of what I have been doing for the past ten years before treatment for CCSVI in order to create an environment for my body to heal and become stronger from a devestating attack of MS. You can find out more, get some great recipes and read excerpts from my journey through MS by purchasing my cookbook "Recipes From The Heart Complete". This book is filled with wonderful recipes, hints and tips using organic, fair trade products from Blessings Coffee Break.

The Diet: 

I had a very compromised digestive system after my MS attack and could only eat mashed potatoes for weeks after, then the first meat I could eat was of all things a hot dog! (I still enjoy a hot dog about once a month with vegetarian chili!). I now follow a diet utilizing low Fat, no saturated or trans fat ingredients.I cleaned out my cupboards and try not to use any processed food. My baking supplies and spices are organic and whole whole grain & gluten free, organic fair trade cocoa and dark chocolate.  I use Extra Virgin Olive Oil to dress salads, and cook with. Eggs three times a week or more. Organic, Fresh fruits and vegetables from the Farmer's Market in season and frozen vegetables in winter,  local honey, apple cider vinegar, organic whole grains, rice & oats. I recently started going less dairy & more gluten free using rice and almond milk for cereal and drinking. I  have a probiotic capsule every morning.  I eat mostly chicken, fish, and seafood instead of beef or pork (harder to digest) except in spagetti sauce - a small amount of ground beef in the sauce does not seem to bother me and I do substitute ground chicken or turkey in my sauce and chili as well. I make my own french fries coating the potatoes with spices and olive oil spray then baking in the oven. Sweet potato fries are great this way as well. For Poutine (a family favourite) I usually use pork & beans for the gravy and shredded low fat cheese to melt on top! Delicious! I drink lots of organic, fair trade green tea, white tea and black tea, & coffee because we sell it! Blessings Coffee Break carries Numi, Choice & Equita Organic Fair Trade teas and Level Ground Trading Ltd. Organic Fair Trade Coffees from around the world!

The Supplements:
ECGC-Green Tea Extract I take one/day.

The Vitamins:
Multi Vitamin I take 1 day

Vitamin D3 I take 2000/day in summer and 4000/day in winter
Vitamin C I take one or two per day summer and winter
Vitamin B12 sublingual I take 1 day 

CCSVI Treatment for Wendy

CCSVI Treatment for Wendy
May 27, 2011
Today is my birthday! Four months old as a new woman! Yesterday I shopped alone for four hours! Bought and carried all my own stuff including three ceiling fans, drove all over town, walked around and window shopped. For the past three weeks I have been doing spring cleaning and organizing my house. Today is more cleaning upstairs -has to be done before the weekend. The only two days a week I am down is when I get my Avonex needle. This is for all you naysayers, keep the placebo effect going! I am living my life and lovin it happy and healthy and whole again! Thanks Be To God who gave me this wonderful miracle through Dr. Arslan's skillful hands. Blessings to all. Wendys.

I am not a particularly brave person... - CCSVI Locator

I am not a particularly brave person... - CCSVI Locator

that is for sure. I am a big suck when it comes to pain consequently my hubby rushes to bring me sweets and ice cream when I am feeling pain. I was in pain most days. I found a great  over the counter medicine to take which helped me a lot and I found that  heating pads, prayer, meditation and music also soothed my pain. I never quite understood all the pain I was in.   I was told it was caused by the deterioration of the myelin sheath covering my nerves. I was told some of it was just "sensation" and it would not hurt me... but i did hurt. I was told not to worry and to just  carry on when I had chest pains so bad I thought I was having a heart attack many times. I could hardly breathe or move some days it hurt so bad. I was told that my muscles would heal and work better if I used them more, I did, but it hurt so much. Epsom salts baths would help a lot with muscle pain and heating pads as well. I was told to do deep breathing exercises and sing. It hurt but I did it anyways. I smiled even though it hurt. I tried to learn new things to keep my brain working and to think clearly even though that hurt. January 27, 2011 my IR Dr. Bulent Arslan performed simple angioplasty for CCSVI, opening my blocked azygous vein, and right jugular vein valve and upper vein. Today the only thing that hurts is my heart and that is breaking for all of those suffering with Multiple Sclerosis whose hope is to be diagnosed and treated for CCSVI and have some of thier symptoms releived in Canada.

RESEARCH:

The following research is how I made my decision to have treatment. I spent over two years reading and researching before booking my treatment with Dr. Arslan. At times I had to read two three and four times and ask people to help explain it to me. I have made some wonderful friends on facebook including doctors and nurses who know how to turn medical jargon into plain English. Many thanks to my facebook friends Joan Beal, Sief Hart and Dr. Bill Code .

Must Read: All of the notes from Joan Beal's Facebook Page:CCSVI-in-Multiple-Sclerosis. Also the whole CCSVI Alliance website including videos.

Great research links can also be found on Facebook:Denise Manley Facebook:All notes & papers links in one place

If you have not read this research it is not a good idea to book treatment. If you find it too difficult to read and understand the research please ask someone to help you.

CCSVI Treatment One Month Post Angioplasty

This has been such an exciting month for us. New changes every day. My vision and hearing are so much better and we notice things every day are different. I have so much energy it is astonishing! Meeting our new neighbours in our park in Florida I am very surprised how easily I can remember all their names and introduce them to others as well! My Sudoku puzzles are getting easier to do and I have more "I won"s than "I lost" than ever before in my book. My dry mouth is definitely diminishing and my bladder and bowel function is vastly improved. Heat intolerance is somewhat better but not so dangerous as before treatment. Pain is minimal...still no neck pain or need to prop up my neck with pillows and flax wraps. Life is Good!

The Treatment Plan and Procedures Accomplished

Hi everyone! Here is my update of my journey to angioplasty treatment for CCSVI with references you can see for yourself. It was about one year ago in early November when my facebook page, email and phone lines lit up with a hundred messages to watch the CTV news report by Avis Favaro about a new treatment for Multiple Sclerosis- angioplasty for blocked veins!
 CTV News Report on CCSVI
An Italian Doctor, Paolo Zamboni, had been looking for an answer for his wife who had MS and found in his research study that most of the MS patients also had narrowed, blocked or twisted jugular and or azygos veins (the veins which drain the brain and spinal cord).


Joan & Jeff Beal (jeff has MS) were also featured on this news report and I connected with her through facebook. Joan has pages and pages of notes with references to the research she had been doing for her husband Jeff and I started to follow along. They have started an organization to educate patients and doctors at CCSVI Alliance. All the latest science and medical studies and papers can be found at this website.

In late December early January I realized that this new treatment deserved more of my time to research and I made a decision to put my business on hold for one year and do as much scientific and medical research as I could, talk to as many people as I could and get connected with those who were pursuing treatment. Which I have done. I have spent three to five hours a day most days researching CCSVI reading medical journals, publications, studies, etc. My head and eyes hurt a lot and my shoulders and neck as well. I also had to read it all over again to Gus and was happy to find a lot of videos we could watch. I also become active in advocating for Canadians with MS who are being discriminated against not receiving treatment for CCSVI, through a grass roots organization AFA, Angioplasty For All. We have one of the top lawyers in Canada working on a Canadian Charter of Rights & Freedoms case which we will win. Please support us if you can and join the $20/month Club for one year. 
Midway through our Florida vacation I met a fellow online, Mark Lane's Liberation Blogspot who had put a plan together for CCSVI treatment on his blog and I followed along with him. He was "liberated" in Poland and is doing very well!. Oct 14 2010!
I met a wonderful lady on facebook Nicky Beagle-Watts who was angioplastied on August 19 and she is doing very well. You can find her and others who are being treated in Florida on CCSVI FLorida Group.

I chose Florida to be as local as possible for aftercare.and because I am so healthy and will be staying for the winter months. Dr. Bulent Arslan of the Moffit Cancer Centre is my doctor. He is amazing and can be reached at Moffitt Cancer Center Tampa Florida.

I have also spoken with a few people from Sarnia, London, Windsor and Owen Sound area who have already been treated and are doing well.

My plan has been achieved, all my tests are done and I was tested and treated in Tampa Florida for CCSVI on Jan. 27. I thank God and ask him to Bless America where these doctors believe in treating damaged veins and helping our brains heal over time.

I have heard some very happy stories and also some very sad stories and have met some wonderful facebook friends along the way and I know the Lord has been leading me in the right direction because of the people He has placed on my path along my journey this past year. Gus and I have done lots of praying about this decision as well and feel we are definitely going to be OK no matter what happens...God has a plan and He knows everything.

The plan has been accomplished and I am liberated. On January 26, 2011 my doctor, Dr. Bulent Arslan  told me I had definite CCSVI! After reviewing my doppler ulltrasound report from Dr. Sandy McDonald Barrie Vascular Imaging and my MRV results from AI3 Clinic in Clearwater, Florida.  He felt he had enough evidence of venous insufficiency to go to the venogram procedure and angio ballooning veins where required. I had a blockage in the azygous vein and the left jugular valve and vein. Angioplasty was successful and the healing began.

The first thing I felt was no pain! After twelve years! Then I felt a lessening of numbness overall in my body. That very night I felt my leg and sensations from the floor I was walking on. I knew it was carpet by the feel of the texture. Today I have complete and free movement of my legs and arms - no added weight from restricion. I still have some minor numbness and tingling but the level has lessened dramatically.This will take time. Balance is 100% and no more fuzzy head!  My hearing is returning. I can feel my full face, neck. ears, eyes..etc. I can feel my mouth, tongue, cheeks, smile, my neck muscles now bulge when I make a face and absolutely no pain in my neck! It is hilarious! I am laughing all the time now! Just recently I was becoming worried I would have to go on medication for depression as I was feeling worse every day inside. Now I am happy!

More to come!