Showing posts with label MS. Show all posts
Showing posts with label MS. Show all posts

Saturday, February 11, 2012

Good Health Is Everything

What does it mean to have good health? To me it means everything. No more lying around in pain and anguish. No more brain fog. No more weakness, no more overheating, no more terrible fatigue and feeling like I am going to have a stroke. I am able to walk around the park, I can then still go home and do housework, stay up late to watch a movie, dance, swim, exercise, have fun, go to church at the real parish church and not at my house church. Join the ladies group and sit through a long meeting without those cooling bands wrapped around my head. No more yawning but lots of wade awake moments. My poor hubby can't keep up with me anymore due to the fact he has to have a hip replacement this year. Reading a book in two days the way I used to and retaining the storyline for two weeks this is amazing for me! I have to start looking for a way to make some money so I can continue on this path of wellness. It is not cheap as I have to take a lot of supplements, join a health club, eat right and save up in case I have to have the angioplasty done again. God bless Dr. Arslan and the other good doctors in the USA and those in Canada who are for us and helped us so much. Blessings to all!

Friday, February 10, 2012

One year post angio Doppler Ultrasound Results

One year post angio Doppler Ultrasound results - 100% flow absolutely no sign of stenosis! God Bless Dr. Arslan and the USA!

Friday, January 27, 2012

One year Angioversary!

This day is a blessing for us it is my one year angioversary. We have seen such wondrous things the past year. My life is totally changed. We beleive that we have received such a wonderful miracle from the Lord and we are truly thankful to God for guiding and directing our steps to have my procedure done last year. I no longer have symptoms of CCSVI and very little symptoms of MS. Have a great day everyone I know we will be celebrating!

Saturday, January 14, 2012

CCSVI Florida News

Beginning February 1, 2012, Bulent Arslan, M.D. (who performed over 300 CCSVI procedures at the H.Lee Moffitt Cancer Center and Research Institute in Tampa, Florida), is the new Director of Vascular and Interventional Radiology at the brand new state of the art, Rush University Medical Center, in Chicago, Ill.

Jennifer Sweeney. M.D. who has worked closely on CCSVI with Dr. Arslan for over a year at Moffitt, will be taking over followup on his patients along with Dr. Jerry Niedzwiecki at the AI3 Clinic in Clearwater.
From:

CCSVI Florida

Friday, December 23, 2011

Thursday, December 15, 2011

11 month MRI post angio results

Had wonderful results from my MRI and neurologist today! - no new lesions on my brain or spine, no reason at this time to go back on avonex. Still off my bladder meds. I am good to go to Florida for the winter. I am ecstatic! I can now feel my whole feet, legs, arms and torso with only minimal numbness and tingling after a long walk...some balance issues persist but still do not need a cane. I am ecstatic! God is so good and I give him all the glory for leading me to Dr. Arslan and AI3 Clinic in Florida!

Tuesday, November 29, 2011

10 Month Post Angio Doppler Ultrasound results

OK PEEPs Great News! I am flowing freely at my 10 month checkup in Barrie....No sign of DVT, no venous reflux, insufficiency, normal venous flow post angioplasty. Dr. Arslan you do good work!
see my page on facebook for lots more CCSVI information, research and links:

(15) CCSVI Treatment for Wendy

Tuesday, September 27, 2011

8 months Post Angio

Hello all!
I am 8 months new today! I have been doing physiotherapy for the past few months and have actually seen muscle recovery and improvement in strength and balance big time. This is huge news as previous physiotherapy sessions left me drained, weak and no noticeable improvement in muscle recovery.l I have just started water aerobics as well for the fall and loving it. Right now I am working for Elections Ontario 2-10 hours per day every day. This is huge. No fatigue, brain is functioning very well and no overheating. I am still sweating and also walking farther each week and hope to soon be up to a good 30 minute walk before I go to Florida. Keep the prayers coming my way for continued healing and recovery, I really appreciate them. Blessings
Wendy

Friday, September 9, 2011

Medications Pre and Post Angioplasty treatment for CCSVI

Here are the meds I was prescribed by doctors and neuros I was taking for ten years or more before CCSVI Treatment last January.
  • Avonex Beta 1A Interferon once a week intermuscular injection. Side effects were racing heart, palpitations, flu like symptoms with aching joints and muscles, headache, very tired and weakness for three - four days following. Along with this I had to take tylenol for up to three days 2-3 pills per day.
  • Oxybutin chloride (Ditropan) for neurogenic bladder. Side effects were excessive thirst (dry mouth) and dry skin. 3 pills per day to help my bladder function properly. (incontinence & urge)
  • Blood Pressure meds:Avapro side effects - none. 1 pill per day.
  • Baclofen - For releif of muscle spasm and clenching.  Side effects were loss of total digestive & elimination system from top to bottom. This story is too gory to tell but if you want to know more you can email me and I will send you all the dirty details. Suffice to say here that it was the most unpleasant and depressing time of my life so far.
  • Steroids - mega dose of high potency to snap my body out of paralysis. Side effects - weight gain, hunger, craving for sweets.
Meds as of seven months post angio - Now I only take my blood pressure meds Avapro once a day.

Wednesday, July 27, 2011

6 Months Post Angio Update

Hi all, A little note to show my progress to date. Video to follow on YouTube soon!

Someone mentioned to me the other day that I could sit outside in this heat wave now without my cooling bands. We rarely put the air conditioner on in the house. It is truly a miracle from God and I am very blessed. Thank God we have a pool to keep cool in though as well.

PHYSIO:
I have spent the last couple of months getting my strength and muscles built up through physiotherapy, swimming, walking and hiking. It is not going as fast as I had hoped it would and I am still finding issues with the muscles not responding as I thought they would by now. My feet and lower legs do go numb a bit after about 30 minutes of walking but not nearly as much as before procedure as they would be numb right up to my thighs within 15 minutes. . I go for a walk most days with my puppy Jasper (we share him with our daughter Lisa). After going head on into hiking on the beach with my walking sticks I injured a tendon and strained muscle in my arm which is still healing. I must learn to take things slowly which I am now doing so with guidance from my physiotherapist. We are hoping to know more about my muscle strength in another month. My physiotherapist holds out hope though, as he has seen progress made after one year where nerves and muscles respond after continued efforts, so we are not giving up. Riding a bicycle and golfing are my ultimate goals for this winter in Florida and this is what we are working towards at physio.

BLOODWORK & Physical Checkup:
Looking very good in all departments! My family doctor is very happy with my progress. No Babinsky's reflex, blood pressure great, losing weight for the first time in 12 years at two pounds per month so far. I can walk, stand, sit, twirl, dance etc...Bladder medication:Oxybutinchloride (Ditropan) was 3xday now 0. Except for the Interferon Beta 1A I take which is suppressing my immune system the way it is supposed to I would have a perfect blood workup! Energy is high and very little fatigue (only on the days after my needle).


NATOROPATHIC DR. TERI JAKLIN:Teri Jaklin in Costa Rica
I am being treated by Teri and I am following her plan for MS patients. This plan can be found here Nutritional Management of MS and also some great videos she has made with Dr. Mark Hacke, Dr. Bill Code & Dr. Joseph Hewett. CCSVI Videos (this will lead you to all 5 videos). They are all collaborating together to help us out with aftercare for angioplasty for CCSVI and have much good advice to follow. I was tested for food and metal sensitivities and have been found to have heavy metals more lead, aresenic and cadmium than anything else so am being chelated with drops for the next two months. (Air pollution, chemicals from my husband's workplace, years of smoking, my past work as a plumbers daughter and sister exposed me to a lot of lead solder, pipes etc.) My metabolism is basically zero which is no surprise to me. I am taking Dr. Jaklin's Neuroform B complex, multi strain probiotics, using castor oil packs and eating basically rice, salads, vegetables and fruit. Protein is powder, hemp hearts fish, eggs, chicken. Found some new recipes so I have been trying out a few. I do not like quinoi which is a powerhouse of protein so must use other things instead. I have just found some I can tolerate in my favourite breakfast cereal mix from  ECO Planet Organics Instant Hot Cereal Apples and Cinnamon which I use as a topping for my fruit bowl along with some goat yogurt and molasses. I am now taking 4000 Vitamin D-3  and sitting in the sunshine as much as possible. Because I do not eat fish I take Fish Oil Omega-3, 1000 mg with epa 1200, Natrol Green Tea Capsules Milk Thistle to help my liver,  and I take Natural Calm with calcium and zinc. Kale, Romaine lettuce, spinach, napa cabbage are my greens of choice along with parsley, time, oregano, cilantro, basil from my garden. Squash, broccoli, zuchinni, Organic Tahini ,Almond Butter., Organic Texmati Brown Rice, Himalayan Red Rice,  Tinkyada Brown Rice Penne Pasta are now staples in my cupboards. Sheep and goats cheese and yogurt and almond or rice milk for cooking and blending. I use honey and mollasses for sweetening and baking. I did not have egg sensitivity so for that I am most grateful as I do like to use eggs in my cooking and baking. I must say here that I am no longer burning from pain in stomach and colon. There is a noticeable improvement in bowel function. I am not totally gluten, wheat or meat free but am dairy free now, I am getting there, as it is very hard.

EMOTIONS:
Depression has lifted about 75% I still feel down a few days but find it does not linger on like before. I have not cried in over six months. My husband would say this is the miracle as I cried all the time before procedure. (He is a saint!) I am happy and smiling a lot. People tell me I am glowing!

NEUROLOGICAL CHECKUP:
August 2-Good checkup. Because I am not in inflammation at this time and I am doing so well I have decided to go off of my Interferon. The side effects are taking a toll on me and I would just like to see if my body can clear the after effects and come to some sort of balance again. Please say a prayer for me that all goes well and that my healing continues. I have two very good doctors supporting me and a lot of peace from the Lord as well. We will be doing an MRI comparison of before and after in December so I will keep everyone posted.

Saturday, July 16, 2011