Hi everyone! Here is my update of my journey to angioplasty treatment for CCSVI
with references you can see for yourself. It was about one year ago in early November when my facebook page, email and phone lines lit up with a hundred messages to watch the CTV news report by Avis Favaro about a new treatment for Multiple Sclerosis
- angioplasty for blocked veins!
CTV News Report on CCSVI
with references you can see for yourself. It was about one year ago in early November when my facebook page, email and phone lines lit up with a hundred messages to watch the CTV news report by Avis Favaro about a new treatment for Multiple Sclerosis- angioplasty for blocked veins!CTV News Report on CCSVI
An Italian Doctor, Paolo Zamboni, had been looking for an answer for his wife who had MS and found in his research study that most of the MS patients also had narrowed, blocked or twisted jugular and or azygos veins (the veins which drain the brain and spinal cord).
Joan & Jeff Beal (jeff has MS) were also featured on this news report and I connected with her through facebook. Joan has pages and pages of notes with references to the research she had been doing for her husband Jeff and I started to follow along. They have started an organization to educate patients and doctors at CCSVI Alliance. All the latest science and medical studies and papers can be found at this website.
In late December early January I realized that this new treatment deserved more of my time to research and I made a decision to put my business on hold for one year and do as much scientific and medical research as I could, talk to as many people as I could and get connected with those who were pursuing treatment. Which I have done. I have spent three to five hours a day most days researching CCSVI reading medical journals, publications, studies, etc. My head and eyes hurt a lot and my shoulders and neck as well. I also had to read it all over again to Gus and was happy to find a lot of videos we could watch. I also become active in advocating for Canadians with MS who are being discriminated against not receiving treatment for CCSVI, through a grass roots organization AFA, Angioplasty For All. We have one of the top lawyers in Canada working on a Canadian Charter of Rights & Freedoms case which we will win. Please support us if you can and join the $20/month Club for one year.
In late December early January I realized that this new treatment deserved more of my time to research and I made a decision to put my business on hold for one year and do as much scientific and medical research as I could, talk to as many people as I could and get connected with those who were pursuing treatment. Which I have done. I have spent three to five hours a day most days researching CCSVI reading medical journals, publications, studies, etc. My head and eyes hurt a lot and my shoulders and neck as well. I also had to read it all over again to Gus and was happy to find a lot of videos we could watch. I also become active in advocating for Canadians with MS who are being discriminated against not receiving treatment for CCSVI, through a grass roots organization AFA, Angioplasty For All. We have one of the top lawyers in Canada working on a Canadian Charter of Rights & Freedoms case which we will win. Please support us if you can and join the $20/month Club for one year.
Midway through our Florida vacation I met a fellow online, Mark Lane's Liberation Blogspot who had put a plan together for CCSVI treatment on his blog and I followed along with him. He was "liberated" in Poland and is doing very well!. Oct 14 2010!
I met a wonderful lady on facebook Nicky Beagle-Watts who was angioplastied on August 19 and she is doing very well. You can find her and others who are being treated in Florida on CCSVI FLorida Group.
I chose Florida to be as local as possible for aftercare.and because I am so healthy and will be staying for the winter months. Dr. Bulent Arslan of the Moffit Cancer Centre is my doctor. He is amazing and can be reached at Moffitt Cancer Center Tampa Florida.
I have also spoken with a few people from Sarnia, London, Windsor and Owen Sound area who have already been treated and are doing well.
My plan has been achieved, all my tests are done and I was tested and treated in Tampa Florida for CCSVI on Jan. 27. I thank God and ask him to Bless America where these doctors believe in treating damaged veins and helping our brains heal over time.
I have heard some very happy stories and also some very sad stories and have met some wonderful facebook friends along the way and I know the Lord has been leading me in the right direction because of the people He has placed on my path along my journey this past year. Gus and I have done lots of praying about this decision as well and feel we are definitely going to be OK no matter what happens...God has a plan and He knows everything.
The plan has been accomplished and I am liberated. On January 26, 2011 my doctor, Dr. Bulent Arslan told me I had definite CCSVI! After reviewing my doppler ulltrasound report from Dr. Sandy McDonald Barrie Vascular Imaging and my MRV results from AI3 Clinic in Clearwater, Florida. He felt he had enough evidence of venous insufficiency to go to the venogram procedure and angio ballooning veins where required. I had a blockage in the azygous vein and the left jugular valve and vein. Angioplasty was successful and the healing began.
The first thing I felt was no pain! After twelve years! Then I felt a lessening of numbness overall in my body. That very night I felt my leg and sensations from the floor I was walking on. I knew it was carpet by the feel of the texture. Today I have complete and free movement of my legs and arms - no added weight from restricion. I still have some minor numbness and tingling but the level has lessened dramatically.This will take time. Balance is 100% and no more fuzzy head! My hearing is returning. I can feel my full face, neck. ears, eyes..etc. I can feel my mouth, tongue, cheeks, smile, my neck muscles now bulge when I make a face and absolutely no pain in my neck! It is hilarious! I am laughing all the time now! Just recently I was becoming worried I would have to go on medication for depression as I was feeling worse every day inside. Now I am happy!
More to come!
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